I started a community !downtherabbithole for this kinda thing but written content isn’t as easy to find as videos unfortunately. I’m like you and much prefer reading to watching. There’s at least one text link there that’s an interesting read. I think there’s a long-form community on lemmy too, that might scratch an itch?
Thank you. It’s been over a month and still haven’t quite got my head round the fediverse!
It’s not lemmy as a whole is it? I thought the main url is lemmy.org. It’s only a couple of instances that used .ml.
I’ve never actually seen a hose attachment type irl. Neither are popular in the uk.
I’m a walking advertisement!
I feel like an old person shouting at voice-to-text… 
God dammit. !confidently_incorrect !confidently_incorrect@lemmy.world I give up!
I tried really hard to follow the format from the “how to post” sticky and I still messed it up!
I can’t explain it, but all the bidets I’ve seen (mainly continental Europe) have been like this.
Luxury penthouse
I messaged the mods of two subreddits saying “hey, I’ve left this shithole and moved to lemmy. I’ve opened this community there and if you’d like to mod it I’m happy to add you. Just let me know.” No response. I don’t think you can be much fairer than that.
There’s two communities I opened that had existing but inactive communities on lemmy. Again I messaged them saying “do you plan on adding content to get this sub going? If not I’m happy take over for you. Meanwhile I’ve started an alternative. I’d prefer to combine the two communities than have competing ones, let me know what you’d prefer.” Again no response, so I created my own.
I don’t particularly want to be a mod, but the stubborn part of me doesn’t want to put all the legwork into building up a community that has an inactive/uninterested mod.
I mod a couple of communities I missed from Reddit. I’ve been stealing content from there to get the communities going (using the dystopia app so no ads and I don’t interact with Reddit at all). It’s honestly a bit jarring to read the nastiness/aggression in the comments after 5 weeks on lemmy. It’s so much nicer here, I hope we don’t lose that vibe completely as lemmy grows.
You’re commenting in a community called “Reddit”…
I was 21 when I was diagnosed, symptoms started at 18. I was told I’d never be able to work, that I’d never have children, and I’d be lucky to see 30. I went to an irl support group and had to sit through a 55 year old woman sobbing because she needed to take early retirement and she really liked her job. At the time it felt so utterly minuscule compared to the loss I was grieving it just made me angry. I was angry a lot when I was younger. I’m 37 now so I beat the odds and I’ve learnt to live with the unfairness of it - and to accept that people like that 55 year old woman are perfectly entitled to grieve for their loss. Suffering is subjective, and if that’s the worst thing that ever happened to that woman, it’s terrible for her.
RE the pain… MEDICAL CANNABIS. I’m in the UK and it’s only recently been made legal for medical purposes. You can’t get it on the NHS though, I have to pay privately and without a job that’s really hard. But it’s worth the sacrifice - my life has improved dramatically in the year I’ve been taking it. I was on a huge dose of gabapentin (sister drug to lyrica) 600mg at 8am, 12pm, 4pm and 900mg at 8pm. Plus NSAIDs, immune modulating drugs, benzodiazepines, amitriptyline, and 3 different opioids. I’ve reduced those drugs by about a third since I started medical cannabis and my pain is better than I can ever remember.
Hope the lumbar puncture goes well - it’s not as bad as it sounds, promise! The bit of back pain you can get afterward is just like period cramps - a hot water bottle will help 🙂
I’m sorry to hear that. As someone who’s been on prednisolone since 2008 without pause, I truly hope IVIg is available for you (it wasn’t suitable for me). I have a whole bunch of rare incurable illnesses, if you need a stranger to talk to feel free to message me. It can be a lonely journey, I’m happy to help if I can.
I’ve been there. It’s such a relief to finally have an official diagnosis, you feel strangely happy when you eventually get it. Just a little word of caution - if it’s an incurable condition there’s a bit of a dip after the initial “happiness”. It’s still better to have a diagnosis than not, but it can feel a bit anticlimactic. I’m wishing you well!
As soon as Artemis opens their beta testing for the iOS app (or someone else develops one) I’m in. But I hate using web apps.
Unfortunately the person who replied must have missed it.