I was disappointed too. I’ve never liked weed - the smell, the fuss, the mess, the taste. Blugh. I’d hoped oils would be all I needed but there’s no denying that dry herb vaping is more effective for my symptoms. The private pharmacy is going to start offering gummies as an alternative to herb, maybe that will work for me? Fingers crossed!
I didn’t want to say it if it wasn’t already on your radar, but I have PoTS and know a number of people with jejunostomy feeding tubes due to their gastroparesis. I even know a girl on parenteral nutrition. I don’t think I’ve ever met anyone with nausea as their main symptom though so I didn’t think of PoTS until you mentioned you’d researched it.
I love the acknowledgment that it’s not your body - you sound like a loving, supportive partner 🙂 Sometimes the “answer” seems so simple when you’re not the patient but when you’re chronically ill, you’ve already lost so much control over your body… having to take a drug you don’t want to feels like a step too far. It’s hard to explain and I’m not doing a very good job!
THC is not remotely in the same category of awfulness as a feeding tube so I’m glad she’ll probably try that first. And you don’t need to get high high to feel the anti-nausea/pro-appetite benefits - I use less than 0.25gm a day, maybe even half that and it does the trick just fine. Wishing your wife better soon!
I think I did that thing when you start a conversation in your head and then your comment posted mid-thought has no context, iykwim?! What I was thinking was: Feeling nauseated can reduce your appetite, as can repeated vomiting and the anxiety associated with it. People with chronic nausea tend not to want to eat, and not eating (or vomiting what you eat) is far more medically problematic than experiencing nausea. Hence, stimulating appetite as well as suppressing nausea is what makes medical cannabis so useful for cancer patients. But OPs wife isn’t going to see the anti nausea/increased appetite side effects from CBD alone. THC is the more important cannabinoid, and if she’s no longer pregnant/breast feeding she shouldn’t have a problem getting it prescribed- even in the UK. But it will be a private prescription here which is expensive af.
I’ve been prescribed medical cannabis for over a year now and neither CBD or THC oil do anything for my appetite. Vaping dry herb does though, even the low THC stuff. Maybe I’m weird though!
CBD oil does wonders for my arthritis, depression and anxiety though. And I slept for over 6 hours for the first time in 2 years when I started THC oil.
I’m a really big reader and have had 4 or 5 kindles now. My latest is the oasis and it was a considerable payout for me but I absolutely love it. I rarely pay for books, but kindles have a send-to-kindle function so you can download books from anywhere in any of the main formats and just email it to your kindle.
E-reader screens can seem really basic to the uninitiated but the paper white/oasis is just like reading from a book imo. Except you can read it in the dark too.
I feel you. This is the second winter we’ve only been able to heat one room to at least 18C, and that’s not warm enough for my disabled ass. My electric throw blanket is on 24/7 though and is incredibly efficient - it costs less than 25p a day. I would highly recommend one if you can manage the upfront cost. Also wrist warmers are highly underrated imo - cheap, you can knit/crochet them yourself, your fingers are still free for touch screens and they seem to keep me warmer than just a hat alone. Wishing you more comfortable times ahead, friend.
I’ve had 6 covid vaccinations and I’m still not protected. It’s not a case of “having the chance to get sufficiently vaccinated” if the vaccines don’t work on your immunosuppressed body, or if you can’t have the vaccine at all.
It’s unbelievably selfish to go out when you know you have covid. How hard is it to stay home for 5 days or so when you test positive ffs?! The fact that you don’t think staying home for a few days is “justified” when you literally risk killing someone vulnerable by not isolating is frankly shameful.
That’s a really good point. Thanks for the answer!
If someone donates a kidney to a stranger and later on something happens and they need a kidney transplant themselves, do they get a bump up the waiting list? I can see an argument for either side.
I could pay for my prescription, that would make my life immediately better. Pretty depressing state of affairs tbh!
I just finished the Eddie Flynn series by Steve Cavanagh and would highly recommend it for anyone looking for an easy but captivating read. It’s kinda like watching a decent Hollywood action thriller. You have to suspend belief for a large part but it’s kinda fun and the characters are likeable.
This isn’t a spoiler, it’s on the blurb, but Eddie Flynn is a con man turned lawyer and I really enjoy antihero protagonists, particularly in the crime/thriller genre. If anyone has any suggestions, let me know!
Thank you, I appreciate that!
It really depends on the type of community. I created a few a missed from Reddit and honestly the screenshot/photo based communities are piss easy to start. !badrealestate for example is 3 weeks old with 48 posts and 3.6k subscribers. I just posted every day for a few weeks, now other people are posting and I contribute a couple of times a week.
On the other hand !tennis_fans and !downtherabbithole are much harder to get going because they require very regular or in depth text posts. Those two have less than 200 subscribers between them.
What I find really annoying is when people criticise posts on the communities I’ve created, when they haven’t contributed at all. People want more communities, people want more content. Don’t be a dick and then criticise the content that someone has put their time and effort into sharing with you for your enjoyment! Anyway, rant over.
If anyone’s browsing this thread and looking for more (active) communities to join, there’s also !DontYouKnowWhoIAm !clevercombacks !murderedbywords and !confidently_incorrect
It’s really hard for some disabled/chronically ill people to join a protest or a rally/march too. There were a small group of protesters outside Downing Street here in the UK a while back, calling for changes in how disabled people applying for benefits are assessed. I would have loved to join them but it’s so far beyond my capabilities the idea is almost laughable. Creating public awareness or demonstrating your discontent with the status quo is really hard when your practically housebound.
I’m really late to this because I’m going through the community posts in order, but I wouldn’t be pessimistic just yet. I’ve created a number of communities I missed from Reddit and they grew really well - they’re photo/screenshot communities though.
Confidently_incorrect is 3 weeks old, has 27 posts and 2.3k subs.
Terrible estate agent photos is 3 weeks old. 46 posts, 3.5k subs.
Don’t you know who I am? is 2 months old, 35 posts and 2.5k subs.
Clever comebacks is only a week old; 7 posts and 108 subs. I haven’t even listed that on this community yet and that where a lot of my subscribers came from for the others.
!badrealestate is the only community that anyone other than me has made a post in. I was just really diligent with posting - maybe twice a day for the first few days, then once everyday, slowing down to every other day. The only communities I’ve created that haven’t grown are the ones I haven’t posted in daily. You should keep at it - the people will come eventually!
It’s a Christmas miracle! 😉